Tuesday, May 21, 2024

Ehlers-Danlos Syndrome Awareness

 May is Ehlers-Danlos Syndrome Awareness Month. As someone with this rare genetic disease, I want to do my part so more people are aware of it. I hope someone will see these photos and say, "Hey, I can do that" and won't wait decades, getting sicker and sicker, before they are diagnosed.

This is one of many EDS "party tricks."
If you cover my pants with your hand, my head looks like it's on backward.

Cute EDS Awareness t-shirt.

This is the EDS "gang sign.
Take your thumb and touch your forearm


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