April is Autism Awareness Month. I think I have mentioned it
on the blog before, but I haven’t talked about it much because it’s my son’s
story not mine. But I think other people could use the encouragement to perseverance
of knowing Matt’s story. Our son Matthew is autistic. He was diagnosed when he
was two years old. The doctor told my husband and I that our son might eventually
learn to talk. Then, he handed us the card of a support group and told us to
come back in six months.
The next years were hard. Our son didn’t sleep. Okay, he did
sleep some—3 hours out of every 24. He sent the rest of the nights screaming.
Cal and I took turns sleeping and rocking a child who tried to throw himself
out of our arms. I discovered that if you miss enough sleep over enough days,
you will have visual hallucinations.
The other kids learned to sleep through the screaming. They
learned that Matt would be walking and fall over asleep. And where he fell, there
he slept. And no one, on threat of death, would walk through the room where
Matt was sleeping.
But as Matt’s occupational therapist once said, “Everything
went right for Matthew.” He got an early diagnosis back when most autistic kids
didn’t get a final diagnosis until they were five—and the brain was set. We
started Matt on the Autism Diet, which had a huge impact on his communication abilities.
Matt had an amazing occupational therapist who believed there was a way to “save”
these kids, back when one no believed they could be helped. She explained why
he banged his head against the wall, why he did rhythmic screaming, and why he’d
flap his hands and spin and spin and spin. She taught him to put his hands out
when he fell so he wouldn’t land on his face. He helped him strengthen the
muscles in his mouth and tongue so he could talk clearly. And she taught us how
to touch and comfort him without causing him pain.
And then, she gave all of us work to do. Cal, the kids, and
I all worked with Matt—every waking hour. Jake’s job was to keep Matt from
slipping into his own world, to force Matt to participate in the real world and
interact with people. (If you know Jacob, you know that this is the perfect job
for him—he’s, uh, tenacious.) The occupational therapist told us that Jacob was
God’s gift to Matthew.
And God blessed everything we did, all the years of Matthew’s
hard work and ours. Matt’s almost sixteen now. And he’s as “normal” as the rest
of us. In fact, in what seems to me to be the ultimate irony, Matthew loves acting and last year played Puck in our local Shakespeare troupe's production of A Midsummer Night's Dream. Our goal was that Matt would be eccentric. And there aren’t many
eccentricities he has left. Does he still have some things he struggles with?
Yes. But so do I.
Yesterday, I read an article in USA Today about the latest autism research, particularly the work
of Dr. Geraldine Dawson, whose research into the genetic links of autism we
have been a part of. A new day is dawning for autistic people. They are amazing
individuals with tremendous gifts. And I am so thankful that they now have a
future that’s looking brighter.
